Living With Mr P: Our First Anniversary

Jane head 040919

I’m still me! A simple statement. One I wasn’t so sure I’d be able to say on 6th September 2018 when I got the formal diagnosis.
Mr P has brought me new anxiety and physical challenges, but I’m still the me I was before 6th September, same fears, same vanity, same ambition, same desires.

My drawing and painting has changed over the last 12 months. I can’t produce the fine detail of the past, but this has given me a bolder approach to my painting. To compensate for the lack of small detailed hand and wrist movement, I now stand at my easil and paint using the full movement of my body. As a result my artwork is richer in colour and emotion and feels more authentic.
Mr P has made me more creative and daring, and my output positively effects my ability to cope with Mr P.
Art is my therapy!

Mr P has opened me up to new experiences and challenges. In the last 12 months I’ve done:

  • The London 2 Paris bike ride (and the training to do it).
  • Joined a running club.
  • Got involved in Breakdancing and the urban arts scene.
  • Started doing yoga.
  • Had a tattoo!

Thanks to Mr P I have made some amazing new friends. I hope, friends for life.
I now have less time for negative people, and I recognise and love fiercely the positive friends and family I have.
I’ve learnt that the simplest gestures and thoughtful words can sometimes change your world.

Mr P may not define me, but I accept he is now part of who I am.
I am going to make something positive out of this situation. To talk about Parkinson’s and raise awareness of it through positive actions.
I’m determined to try to ensure life doesn’t close in on me, there are too many new experiences, challenges and paintings to be created.

Jane 040909

Awareness and Art……..

Paul 55mins
Paul, 55mins

It was a strange day yesterday: the eve of World Parkinson’s day, and my six month PD review appointment at the wonderful QMC Nottingham. The waiting room provides a harsh reminder of the stages and effects of this condition. If anything makes you aware of the importance of funding more research for new treatments and to find a cure, it’s sitting in this waiting area as a relatively newly diagnosed patient.

My appointment was over an hour late, but who cares? These Parkinson’s professionals are amazing and I can’t thank them enough for dedication, support and efforts to help make the situation as bearable as possible.

As for me, I stay on my 10mg of Ropinirole, keep up the running and cycling and keep my fingers crossed for a longer ‘honeymoon’ period. As part of PD Awareness Week and World PD day, I decided to ‘come-out’ at my regular Wednesday evening life-drawing group, and it felt good!  For me a problem shared is a problem halved, and by speaking about my own condition it feels like I’m doing my own little bit for PD awareness. As for my art, I thoroughly enjoyed creating bold, bright, positive drawings last night, which I’m sure reflected my mood after sharing my diagnosis with creative and supportive friends.

Valuable Distractions

I had all good intentions of going in the studio, finishing a new painting and posting it on here this evening. Instead old friends popped round for an unexpected catch-up. We ended up chatted for hours over multiple cups of tea, leaving no time for painting.

Reflecting on a week where I’ve spoken to a number of friends who are really struggling with life changing bad news, this long, lazy Sunday afternoon of conversations with good friends seems like a much more valuable use of time. I’m glad it took priority over painting.

So here’s a painting from a little while ago that seems to reflect my current February mood: